I’ve had a few people ask me lately if I was ever going to write an update after the last hospital visit, and I realized I haven’t given any updates lately outside of short Facebook posts. I’ve just been too tired to connect thoughts long enough to warrant a blog post. But here we go.
The clinical trial is going really well. My results in October showed an 80% reduction in bone lesions from my last set of scans–amazing news which left me smiling for days. It was the best birthday present I could have received. My bloodwork came back about the same as last time, which seemed odd when paired with the lesion reduction. But my levels had improved greatly the last time I was there, so it seems like the lesions were just taking a little longer to catch up.
I’ll go back again in January. The first phase of the trial is technically over in July (1 year), but they have certain markers they look at every 3 months to determine how/when I’ll move forward. If I do awesome, I may just get dismissed and go back to standard care with a doctor here. If I’m somewhere in the middle, I may get moved into the next phase of the trial with a new drug in July. If I don’t respond well to this phase, I may get kicked out of the trial and be referred back for conventional treatment. So far, so good. I’m hopeful to be released into standard care, and to one day soon be able to say that I don’t have cancer at all.
Life in general…it’s good. It’s hard, but it’s good. I started working full-time again last week for the first time in over two years, while keeping my 2nd part-time job, and my body went into major revolt. I ran fever all week, had major nosebleeds, broke out into hives, and hurt from my hair to my toes. The last week was the worst I’ve felt in probably close to a year. If you would think to yourself that a cancer patient working 55 hours a week is probably a bad idea, you’d definitely be correct.
But when I think about how I’ve been doing in the last six months compared to how I was doing at this time last year, I’m like a brand new woman. Besides, I don’t have anyone to pay my bills for me, and it feels good to be a productive member of society in some way again. I’m going to give it my best shot and see if my body will adjust, and I can always scale back if necessary.
So that’s it, really. Work, eat, sleep, repeat. I’m literally taking things a moment at a time right now, rarely making plans any farther than a day in advance. I don’t know how I’m going to feel tomorrow, but I can tell you that right now I’m enjoying a cup of coffee and will crack open a book when I hit publish on this post. We’ve reached the time of year when I want to hibernate in my pajamas as much as possible, and I’m reflecting a lot as the holidays approach on Christ in me, the Hope of Glory. May you be able to see Him, and may you know the hope that He brings.